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‘Just to be here is enough for me’: Oya Rhodes’s survivor story

Oya (center) with her children: Cayleigh, 13; Caysie, 6; O’Rhyan, 9; and Sevyn, 8


Oya Rhodes, 30, of Wiggins is a mother of four and a former certified nurse assistant! who is now a work-from-home medical customer-service representative.

MY HEALTH CHALLENGE

For starters, I could hear whooshing in my ear. I also suffered from stiffness, limb weakness and slurred speech and began to lose my balance. My vision became blurry, so I went to the eye doctor — where I was told I may have had a stroke and referred elsewhere. I was misdiagnosed and got a second opinion because I knew something was wrong.

After a CT scan and MRI, I learned that I had a mass on my brain and could not go home. The nurse kneeled beside me and told me it looked cancerous and aggressive.

Scan of Oya Rhodes’s brain tumor

At that moment I didn’t know what to do or how to feel. I just went blank and called my Aunt Cynt. I was told I needed a miracle. The medical team told my family that I was declining and that my mom could come to take me off life support. It was not looking good.

God said different. I woke up from a medically induced coma after having swelling on the brain with 70% of my brain clotted, I had a tube in my throat. I went through a lot, so just to be here is enough for me.

Some days I get down, but I ask God for strength. I cry, but I always keep going!

MY TREATMENT

I had three angiograms to shrink the tumor and cut off its blood supply before brain surgery. I recently had another surgery to get the filters that prevent blood clots from traveling to my heart and lungs removed. I am doing so much better!

THE HARDEST PART

I think the hardest part is being in the shape I’m in now. One day I was normal and able to function. Now I feel as if this tumor slowed me down. I had to relearn how to speak, walk and use my fingers, I also suffer from memory loss.

THE SILVER LINING

The most rewarding part is overcoming all these trials and being able to encourage others through my resilience. Life as I once knew it will never be the same, and I feel sometimes like I’ve been dealt a terrible hand. I ache. I hurt. I lost the ability to chew and swallow on one side, I also am deaf in my left ear, as that tumor damaged a lot of nerves. It tried to take me out!

WHAT LIFE IS LIKE NOW

Oya Rhodes

For the most part, I am adjusting pretty well. I have come a long way! I returned home with a walker, a bag of medication and a tube in my stomach, but I am adapting at a good pace. I do tend to rush the process, but I try to remember to give myself time.

This experience has changed my life in so many ways. I realized how short life can be, and I focus on my health more.

Because of this event, I will no longer sit back and suffer in silence or ignore warning signs. I pay attention to my body. Since having brain surgery, I completed an eight-week travel assignment in Pennsylvania, and I also enrolled in classes and became a certified clinical medical assistant.

MY ADVICE TO OTHERS

My advice to those who are facing a serious health challenge is to get seen; don’t wait. Pray, and have faith that everything is working out for your greater good.

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